Friday, 6 June 2008

Prognosis Negative!!

First, the good news.......









Ok, now the rant.

1. Another BFN. Despite a month of steroids and baby aspirin, my non-baby-friendly body just won't play ball. Another double blast photo thrown ceremonially into the bin.

2. Thank you Fertility Clinic for the following examples of poor service:

a) Telling me not to call to find out whether we would get any frosties, but to wait till you send me a cycle summary, which could take 2 weeks. Despite their negativity, I did get one frostie this cycle, so have 2 in the bank which will no doubt be flushed into the wide, infertile ether next month.

b) I asked for my recurrent miscarriage result print-outs at my BT so I could consult Dr. Google myself. Thank you for not telling me that I'm a compound heterozygote for the MTHFR mutation, meaning that I have a very high chance of recurrent miscarriage. What do I have to do to get some medical service, here? Why am I constantly having to do research and second guess everything? Are you just playing the numbers game until I give up?

c) Telling me in January that there probably wasn't any tissue left to test on that blighted ovum. In amongst my test results the other day was a result for this self-same miscarriage from FOUR MONTHS AGO. It was a chromosomally normal little boy. I hate my body. :-( So I walked around all day thinking of this boy.



My next steps are as follows:

To get an appointment with a well-known recurrent miscarriage specialist here at the Women's and to take in my auto-immune results. Clearly the Fertility Specialists are not Loss specialists.

To start mega doses of folate and B6, B12, C group vitamins in case this MTHFR is a factor.

To do a natural cycle in June when we go away for a week to Qld, and then a possible FET in July.

That is all.

4 comments:

pickles said...

hey Mez,

you have probably had a gutfull of hearing the word -Sorry -
so I'll just say THAT SUCKS

I was mortified to read your blog. . I CANNOT BELIEVE they did not openly dicuss these issues or tests with you.Get another opinion mate.

Makes me want to drop some hard core expletives !

I will assume you have made the trip to the bottle shop by now - tuck in sister

much love to you,
Catch22 X

Roxy said...

Thing of you Mez.
It seems the (more expensive) WA clinic may be doing something right (although I am still waiting for them to give me my miracle!).

Good on you for not being a passive consumer and for taking an active approach to managing your health. I did research into the MTHFR mutation and thought I had chanced upon the answer I had been looking for. I took it up with Dr P and he was receptive, agreed to tests which then showed it wasn't my problem after all. I have still upped my folate, though, just in case.

Roxy said...

Sorry ... that should have started "Thinking of you Mez".

Princesses in Muddy Puddles said...

Mez, you already know how sad and angered I am by all this. Glad you are taking your case to someone who knows what to do in these situations.